My journey from UC to J-pouch

unwell unrelated to UC and stoma nurse chat

This morning has not been as good, been suffering from short of breath, dizziness and deep, hard beating of my heart, erratic.

They have put on surgery/flight stocking…..how attractive ;o)

Saw Tony, Grace, Oscar and Tom today, I really enjoyed them coming. They behaved really well and they seem quite happy and unaffected by everything.

Chest feeling better tonight, I hope it stays that way. Evening on the ward is quiet; let’s hope it stays that way.

Tony continues to text me about day to day stuff such us what our little monkeys are up too!!!  Some messages have made me very much grin.

Saw the stoma nurse today. She is very nice and easy to talk to and has all the information I need, she we now be part of my care before, during and after the Op.

She left me some leaflets on ‘Living with an Ileostomy’ and information if I have the Ileo Anal pouch (the reversal).

She also gave me a useful but graphic pamphlet on a lady with an Ileostomy, practical care that shows you your stoma cleaning etc. She had a tattoo next to it which really got me thinking. I am certainly considering having a tattoo of a phoenix done. She also gave me two sized bags. That seemed a little shocking too but of course very useful to touch, feel and good to visualise, it will help while I am waiting. All a bit surreal, brought home the reality of it.

I am also thinking I should have the reconstruction set up ready during the first Op. but I suppose I need to talk with the surgeon what the options are and how they work. It is pretty specialised, and each surgeon will work differently.